sandy neider posted on: September 12, 2012 Sharon,you can& 39;t blame yourself for this,I know my Mom blamed herself when I got diagnosed too,but,these things happen no matter what you do as a parent.I was diagnosed in 1995,take Copaxone injection every day,and am still standing!I have only had a few flares of this stinking disease,and I also walk on my treadmill every day,so,my heart goes out to you and your son Jack,it is a life changer for sure!New advances in treatment are coming out so never give up hope,I know I won& 39;t give up or give in!So,chin up lovely lady,life is too short to live it with regrets and self blame over that which cannot be controled.
Susan posted on: September 12, 2012 My daughter was diagnosd 3 years ago and I went
through exactly the same feelings and emotions
We think we can keep our children safe and when
we can& 39;t it& 39;s hard to come to terms with it.
Sharon Kempton posted on: September 12, 2012 I know how she feels,as my son has it too.It breaks your heart to see your chid suffer. Try to go to work. Get a divorce. Not have children. Brings tears all the time. So its a hard thing to live with.
Sharon
Helene Freed posted on: September 12, 2012 Sharon..I know how it is to blame yourself, I did. As a mother you cannot help that. My daughter was diagnosed 4 months before her wedding 7 yrs ago. There are many types of MS (PRMS is what she has). She has been in a zazerbation for several yrs now. She has her monthly infusion of tysabri and other countless drugs. She sees a pain mgt dr along with her Neuro. She did get married (her husband did not run). Her dad and I moved in with them yr & 1/2 ago to take care of her while he works. She has a mobility chair which she needs the majority of the time. They wanted to have children but now are unable to. I have to be strong for her and myself.
FAITH...HOPE....& COURAGE!!!!!!
Helene
Marti Rose-Leslie posted on: September 12, 2012 Please do not blame yourself! I was dianosed 12 years ago with MS, and my daily copazone shots keep it in check. I am still able to walk, , and I thank God daily for that! I do not dwell on this disease....and yet it rears it's ugly head when I over-do things.Exhaustion, and depression are terrible, but there are many others out there who are worse off. When will there be a cure?????????????
Barbara Shovlin posted on: September 12, 2012 I am 34 yrs old and was diagnosed February 2011. My whole family was devastated. I took the news better than all of them. After 15 years of pain and numbness I finally had a name to the problem and was able to be treated properly. My treatment is Copaxone and Ampyra among other things. My father, like you, blamed himself. He to thought, what could I have done better, and probably still does. There is nothing that any parent can do better. Just be there and support him. Like Susan previously said, there are advances in treatment coming out. Don& 39;t give up hope and just keep fighting the good fight for him to stay active.
Keep the Faith...
Barb
Ann Nogueira posted on: September 12, 2012 I was diagnosed with MS at age 28 I am now 57. My treatment is Betaseron and Ampyra along with other medications. I am still mobile and can still drive. I am in the Secondary Progressive stage of the disease. My mother blamed herself too, but I know it was not her fault, just like it is not yours. Just be there for him, but don't baby him. He is stronger than you think. I've lived with this for many years and I don't indend to give up!!
Keep the Faith...
Ann
Beverly Douglas posted on: September 12, 2012 Hello Sharon, don't blame yourself. I too have a son with MS, for the last 3 years we have struggled with this disease. Copaxone helped me so much. My son doctor started my son on Rebif for a year or more and now he is on Copaxon and doing better. My son has a family 4 children. He has a drive in his self that he is not giving in but is putting up a good fight. He is not letting the MS keep him down. I too have MS last 10 years, but I have MS but MS does not have me. I have not been on my meds for over 2 yrs. now that my SSI starts in November I can start my medication again. Sharon, make sure your son stay on his medication .
Take care
Beverly Douglas
Alyssa Mazur posted on: September 12, 2012 Sharon,
I may not be a doctor but I did write my masters thesis on MS, have a father with MS, and was diagnosed with MS when I was 16 and am now 29. MS is not something that comes from the mother and it is not hereditary. This is just the short of all the research I did and conversations I have had with my neurologist. The thing you need to remember is that Jack will not die from MS, but rather with MS years down the road.
I am also the co-founder and co-facilitator of a peer support group in LA and would love to offer some support for both you and Jack.
Alyssa
cathy posted on: September 12, 2012 JACK
I WAS DIAGNOSED IN 2001 MY DAUGHTER WAS 5 MS DOESNT NOT COME FROM THE MOTHER I BELIEVE ITS AN ENVORIMENT THING SO MUCH CRAP IN THE AIR AND OUR FOOD AND THE WATER
JACK ONE DAY AT A TIME FIND OUT ALL U CAN U BE SURPRAISED WHAT OTHER FAMOUS AND WONDERFUL PEOPLE HAVE IT. DONT DO I DID GO OFF YOUR MEDS I GOT DEPRESSED AND SEEK HELP AND WENT OF MY MED
DAY BEFORE I HAD A MRI AND SHOWED THE DOCTOR I HAD MORE LESIONS AND I COULDNT LIE TO HIM IT FELT LIKE I WAS HAVING A STROKE
SO MY FRIEND IF U NEED ANYBODY TO TALK OR BE A MS BUDDY PLEASE EMAIL ME
LOVE TO YOU YOUR WIFE AND BABY AND TO THE REST OF THE FAMILY
CATHY
Tami posted on: September 12, 2012 My son Tony has MS and was diagnosed his Sr year of High School. I was diagnosed that fall, he is 27 now and I am 47, He refuses to take medicine, I havent for years. Wish we knew if it really helped us or not??
liz posted on: September 12, 2012 Hi Jack and Sharon hope all is well....I was DX in July of 2002 im in relapsing remitting stage and have been since, im doing fine i dont work as i get very tired easily but if you just take it one day at a time and do what YOU are able to do you should be fine.
Adrienne posted on: September 12, 2012 Sharon, my heart goes out to you and your son jack...I have m.s. for 25 years now, and I know my mother blamed herself too! It is not your fault! I am a mother too, and I am scared to death that I might pass this to my child. i don& 39;t know what i would do, if god forbid that happend! i am talking copaxone now and it has stopped the progression! I have been talking it for about 10 years and I only wish this was available when I first got sick. Vitamin D3 is a good start! And I just read that legumes and peanuts are out. Who knows if this works, but it can& 39;t hurt to try. If you or jack have any questions that I might be able to answer, please don& 39;t hesitate to contact me . Sometimes it just helps to talk to another person with this bull shit disease!
Take care and I hope they find a cure soon! (kind of a selfish reason). Adrienne :)
Thomas Handy posted on: September 12, 2012 I'm 54 was diagnosed 2 years ago, but had mystery symptoms for 10 years. I took Avonex injections for almost 2 years, it was making me worse, I now take low dose Naltexone, I'm still walking and driving. I've also had the CCSVI treatment done with mild success. I'm constantly researching online, Vitamin D plays a role in keeping you healthy too.
Marla Knight posted on: September 12, 2012 When I was first diagnosed my mom said to me "How can you be so positive and upbeat?" I said "What good does it do to sit around and cry" MS is not a fatal disease, I am glad that it is all I had considering what all they tested me for. 11 years ahve passed and I am still standing! Sharon needs to realize that worrying unecessarily can get her her own disease. Calm down, it will be ok!!!
Melanie posted on: September 12, 2012 From one MS mom to another: be kind to yourself. It isn't your fault and there isn't one of us who wouldn't trade places with our afflicted children. We're all behind you and so hopeful you can find the strength to use your celebrity to be a real force for the cause.
Blessings to you both.
Mlanie
Susan L posted on: September 12, 2012 I know that if my Mom were still alive today... she would be devastated to know that i have diagnosed with MS.. The final test was conclusive...all this news just happened this Spring.. at least now i know the reason for not feeling so great off and on--why my feet started out numb on my left foot and slowly went over into my right foot..why my vision goes blurry off and on... it it very hard to accept that this is what i have... but Sharon i would give anything right now to have my Mom to talk to when i am down.. just be there for your son..that is what he needs more than anything... trust me.!!
Elizabeth Fellows posted on: September 12, 2012 My daughter Kristina was diagnosed 1 year ago in 2011. She was 36. She is coping, but it is very difficult for her at times. Today was an awful day, she had double vision and trouble walking. Tomorrow could be great.. it changes all the time. We are fortunate to have a fantastic Neurologist here in Calgary. We take one day at a time.